Celiac Support Groups On The Web
One of the most crucial support mechanisms for those who have
to live with the gluten-free diet is contact with other celiacs.
These people can help you learn where you can shop to find some
of the obscure substances we cook with (e.g. xanthan gum, tapioca
flour), restaurants that are celiac-friendly and have safe foods,
as well as sometimes offering workshops, guest speakers, and
annual food-related events like picnics and banquets where you
can, for once, relax and enjoy a meal (relatively) worry-free.
This page is a (hopefully growing) page of links to celiac
societies who have a web presence. If you find a society in your
area, please do go to their meetings.
My only wish for the plethora of celiac societies out there
(Gluten Intolerance Group of North America, Celiac Sprue
Association of the USA, American Celiac Society, Celiac Disease
Foundation) is that they would all join together into one big
group. I believe they could accomplish a lot more under one name
(even though I do realize a lot of issues would need to be
resolved, ultimately presenting a solid front could only help).
- Canadian Celiac
Association (CCA)
- This page has a lot of good information on celiac
disease, as well as a comprehensive list of this
chapter's events, and contact points for other areas.
- CSA/USA Celiac Sprue
Association of the United States of America
- Basic information on the disease and the group. Also
includes a print-out-able mail order form for their
materials, including the *Highly Recommended* "Cooperative
Gluten-Free Commercial Products Listing" which
for a mere $8.00 will rapidly become your best friend at
an American grocery store.
- Celiac Disease
Foundation
- This group, headquartered in California, has basic
information on celiac disease, the diet, diagnosis, and
more.
- Wichita
Celiac Support Group
- A CSA/USA group has its own page here.
- St. John's
Celiac/Coeliac, Dermatitis Herpetiformis (DH),
Wheat/Gluten-Free Email List
- Look for information here on how to sign up for the
Listserv's daily email list. There is a LOT of
information on this list so prepare for a huge influx of
email (even in the digest format, this list is daunting)
but just remember you aren't obligated to read every
word; skim for the information that most intrigues you.
- Local
Groups
- The most comprehensive list of local celiac support
groups can be found on this page, provided by the St.
John's email list.
- Associazione
Italiana per la Celiachia
- An Italian society (written in Italian).
- The
Finnish Celiac Society
- Wish I knew what it said. :)
- Austrian
Celiac Society
- More of the same.
- Portugese
Celiac Society
- Nice gluten-free symbol and it looks like a lot of good
information.
- The Swedish Celiac
Society
- Has addresses to all of its branches, and more.
- The United Kingdom
Coeliac Society
- Finally! One I can read! I hope I can order their
gluten-free cookbook so that I can provide my kids with
gluten-free British goodies, since my kids are 1/2
English.
-
- If you'd like to have your site added to this page,
please drop me an Email
message and include your URL. I'll check it out, and
include it during my next update.
Copyright ©1998 Linda Blanchard All Rights
Reserved. Date Added: June 15, 1998. Last Update: October 12,
1999.